.png)
EVENTS
Opportunities That Bring Us Together
Beyond Usher Syndrome events bring families, friends, researchers, advocates, and our community together to raise awareness, build connections, and support the search for better treatments and a cure for Usher Syndrome.
🤝 Community
Connect families and create a supportive network.
🔬 Research
Raise funds to advance Usher syndrome research and treatment development.
💙 Awareness
Help more people understand Usher syndrome and the experiences of those living with it.
Why We Host Events
Your Support Matters
When you participate in a Beyond Usher Syndrome event, you're helping build awareness and support research into Usher syndrome. Every conversation, donation, registration, and act of participation helps bring us closer to a future where families have more answers and more treatment options.
Every event is an opportunity to turn awareness into action. Our events create space for families affected by Usher syndrome to connect with one another while raising critical funds for research and building a community committed to a future beyond Usher Syndrome.
Our Upcoming Events
Silent Auction
September 20 • 3:00–4:55 PM
At Fortified Fitness & Online
Don’t miss our small but exciting silent auction, featuring a selection of items and experiences you’ll want to bid on! Every bid helps support Usher syndrome research, so you can have a little fun while helping create hope for families and a future beyond Usher syndrome. 💙
Want to get involved?
For those interested in becoming a sponsor, partner, volunteer, supporter, and/or participant, please fill out the form below.